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Advocacy SIG - Shared screen with speaker view
laura grubb
01:34
Introduction (5 minutes)AAP Updates (10 minutes)Jennifer Morone (20 minutes)International Updates- Ini (10 minutes)Open conversation (15 minutes)
MicheleKelley@UTAH
08:16
Hi all, I am a public health policy and advocacy person, do population advocacy with the white house, cabinet and congressional members, locally too with youth engagement. Formal education is in social work, public administration and policy, and public health. and APHA policy is amazing; was just in a 2 day update with cabinet officials and CDC, EPA and DHHS and congressional members. thank you so much for this SIG.
MicheleKelley@UTAH
10:31
AND also consider AYA health leadership at HRSA (where Trina A was) ;-)
MicheleKelley@UTAH
22:22
Yes!! ACLU is the way to go. It seems that some constitutional rights and the *equal protection clause* is an issue here. And I am not a pediatrician and love you all!! (social work, public health and public policy). ;-)
MicheleKelley@UTAH
25:03
Thank you Jeff for that excellent overview. We are fighting here in Utah (miss my Chicago).
Paula Cody
27:58
Question - what happens to the kids in Arkansas who have histrelin implant in place? Do they have to have it removed?
Paula Cody
28:23
Is it up to the doctor to track down all people with implants to have them removed, or else breaking law?
laura grubb
35:22
https://hearmyvoicenow.org/about-us/
laura grubb
38:24
do you think there is a possibility or means to make global or use in other countries?
chinwe efuribe
46:03
That is awesome!
Tammy Chang- MyVoice
47:21
tachang@med.umich.edu
Annie Hoopes
48:45
thank you, Tammy! amazing program. i may have missed you say this, but do parents/guardians have to provide permission for teen participation?
Ian Van Dinther
51:09
Subscribed!
john santelli
52:45
Great work with your IRB! They are redeemable! With data to educate them.
Jennifer Morone
52:47
My thoughts exactly, Tammy!
MicheleKelley@UTAH
54:45
Yes- we need to educate IRBs and on this manner of youth participation. Lots of IRB battles fought by my doctoral students and colleagues on these issues. Good news is increasing no. of IRB members see their own kids and students in their own institution being active with citizen science and advocacy.
MicheleKelley@UTAH
55:58
Not just ridiculous but unjust. :-) Youth and many parents know this.
Annie Hoopes
56:53
thank you all! i have to jump off. will look forward to continuing the conversation and agitating together in the coming months.
Tammy Chang- MyVoice
57:18
Thank you all! Please stay in touch- would love to help and collaborate! Tammy tachang@med.umich.edu
laura grubb
57:39
THANK YOU TAMMY!!!!
john santelli
01:01:19
Laura et al,
john santelli
01:01:42
Terrific meeting today. Thanks so much! John
Paula Cody
01:01:42
This was awesome discussion. Got to go see patient! Great to see you all
Andrea Swartzendruber
01:02:21
Thanks everyone!
Ariel White
01:02:34
thanks everyone! I need to jump off too!
Jeff Hudson
01:02:38
questions, feel free to e-mail me jhudson@aap.org
Jennifer Morone
01:02:39
Thank you, everyone! Have to jump off too!